Making a Difference

INTERNATIONAL PEMPHIGUS & PEMPHIGOID FOUNDATION

FIFTEENTH ANNUAL PATIENT/ DOCTOR MEETING MAY 18 - 20 BOSTON

Each year the International Pemphigus and Pemphigoid Foundation (IPPF) travels to a popular location bringing together patients, caregivers, physicians, and researchers for a weekend of education, bonding, and friendship.

2012 is no different as the IPPF announces its FIFTEENTH ANNUAL Patient/Doctor Meeting at the Hyatt Harborside Hotel in historical Boston, Massachusetts. Join us May 18-20, 2012 as some of the best and brightest Boston's P/P medical community come out to chat with patients and caregivers on a personal and informative level.

Boston experts Razzaque Ahmed and Stephen Foster head up the speaker list with many more coming from near and far.  For more information visit www.pemphigus.org.

November is Osteoporosis Month -Take Care of your Bones! (posted November 2011)

The Foundation has partnered with Osteoporosis Canada to help our patients better manage their bone health.  Many pemphigus and pemphigoid patients take immunosuppressants that can affect the health of our bones.  Proactive care is needed to stay healthy but "standard" measures don't always work.  Read more in our Bone Care Information Bulletin found on our Managing Our Health page or visit www.osteoporosis.ca for general information.

Congratulations on a Successful Scotiabank Charity Run! (posted October 2011)

Congratulations to all our runners, walkers and sponsors!  Over 200 donors donated in excess of $22,000 for our support group and educational programs.  It was truly a great day - check it out here!

The photo shows some of the members of the Pemphigus Pathfinders team who walked 5K on a brisk Sunday morning, on October 16 in support of the Foundation.

Toronto's "Pemphigus Pathfinders" Hit Its Fundraising Target and Starts Working to Exceed it by $5000! (posted October 2011)

The Foundation has been honoured by your support to our first major fundraising campaign.  We have 2 weeks left and encourage you to participate or sponsor our "Pemphigus Pathfinders" team in the 5 km walk or to get out and run your own race for pemphigus and pemphigoid patients.  If you need any help or would like more information, contact Dan Goodwill at dan.goodwill@primus.ca - our Charity Run Champion.

The funds raised through this event will go to developing new educational materials and supporting our outreach and support group efforts. 

Toronto's "Pemphigus Pathfinders" Hit 81% of Its Fundraising Target! (posted September 2011)

A committed group of individuals are walking for pemphigus and pemphigoid patients and their families and friends this October in the Scotiabank Group Charity Challenge.  Lead by Dan Goodwill, Chair of the Board of Directors of the Foundation and our "Charity Run Champion", the "Pemphigus Panthers" are hoping to exceed their target.  "Many people have simply donated in support of our cause" says Dan.  "It's heartwarming to have this kind of support and very exciting as the money raised will go directly to patient support and education programs."

Please support the "Pathfinders" by donating to this team or be creating your own team! For more information, contact info@pemphigus.ca .

The Foundation Joins the Scotiabank Group Charity Challenge (posted June 2011)

Join us on October 16, 2011 for a 5 km walk/run along Toronto's Harbourfront and raise awareness about our diseases and funds for the work of the Foundation.   Everyone is welcome!  The more people who participate, the more people will learn about our rare condition! 

For instructions on how to register, click here.  To volunteer for this event, contact support@pemphigus.ca

 

Thank You to Our Volunteers! (posted March 2011)

April 10-16,2011 is National Volunteer Week and no better time to thank all our volunteers.  If you are new to the Foundation, you should know that much of what we do is made possible by individuals like yourself.  A wide range of individuals - mostly patients  - are our support group leaders, Board members, or simply individuals who are interested in making a difference.  To all of you who gave your time and talent to us this year, thank you!  We couldn't do it without you!

Canadian Pemphigus and Pemphigoid Foundation Joins Imagine Canada's Ethical Code Program (posted March 2011)

The Canadian Pempihgus and Pemphigoid Foundation places a high value on our relationship with you, our donors.  Without your support we would not be able to achieve our mission to improve the quality of life of Canadians suffering from pemphigus or pemphiogid. We thank you for your commitment to us. We believe that transparency and accountability are essential to our success.  With this in mind, we have recently joined Imagine Canada’s Ethical Code Program.  To learn more about this program, visit our "How Can I Help?" webpage.

 

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