Our Affiliations

The Canadian Pemphigus and Pemphigoid Foundation collaborates with a number of organizations that share our interests.

International Pemphigus and Pemphigoid Foundation (IPPF)

The IPPF and the Foundation work together to provide up-to-date content for our websites.  We also share information about new developments in research in Canada and the IPPF keeps us posted on related progress in the USA and around the world.  We encourage patients to participate in the IPPF’s online discussion forums, chats and email discussion groups.  The IPPF was established in 1994 and has a great deal of relevant informatoin on its website that is useful to all patients and caregivers.  Where possible, we have linked to this information for your benefit.

For more information about the IFFP, visit http://www.pemphigus.org.

 

CSPA logl       Canadian Skin Patient Alliance (CSPA)

The Foundation is an affliate of the CSPA. We share the common goal of helping to improve the overall quality of life of Canadians suffering from skin conditions (such as pemphigus and pemphigoid). We work together to advance our common interests in patient and healthcare community education.  For example, we provide information about our diseases to the CSPA.  The CSPA keeps us informed about new clinical trials that are about to get underway and any public policy changes that may impact our patients. 

For more information about the CSPA, visit http://www.skinpatientalliance.ca.  

 

CORD logo     Canadian Organization for Rare Disorders (CORD)

The Canadian Organization for Rare Disorders (CORD) is Canada’s national network for organizations representing individuals with rare disorders like ours.  It provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. According to CORD, a rare or “orphan” disease is a disease that affects fewer than 1 in 2000 individuals.  Currently, there are more than 7000 rare disorders affecting over 3 million Canadians.  The number of Canadians with pemphigus or pemphigoid is currently unknown. Our best estimate is that there may be as many as 4000 of Canadians who suffer from these diseases.  The Foundation works with CORD to keep abreast of the issues affecting Canadians with rare disorders.

For more information about CORD, visit http://raredisorders.ca.