Local Support Groups - A Circle of Friends

Support groups bring people together for many reasons: For example, they can provide an opportunity to:

  • Share your feelings about living with your condition;
  • Discuss ways to communicate with your friends and colleagues about the disease,
    learn about the latest treatments and health management strategies, and,
  • Equip yourself with information to help educate healthcare providers about your disease (Yes many healthcare professionals have never seen a “real” case of pempihgus or pemphigoid!).

Here is the list of Canadian support groups:

ALBERTA

Calgary Pemphigus and Pemphigoid Support Group
Leader:  Jeannie McKibbon
Email: mcarnie@shaw.ca

BRITISH COLUMBIA

Vancouver Pemphigus and Pemphigoid Support Group
Leader: Tamryn Law
Email:  Tamryn@gmail.com

ONTARIO

Toronto Pemphigus and Pemphigoid Support Group
Leader: Karen Wong
Email: kw_pemphigus@sympatico.ca
Leader: Rena Sky
Email: rsky@rogers.com

Ottawa Pemphigus and Pemphigoid Support Group
Leader: Victoria Carlan
Email: vc_pemphigus@istar.ca 

QUEBEC

Montreal Pemphigus and Pemphigoid Support Group/Groupe de Soutien pour Pemphigus et Pemphigoïde
Leader:  Maria Hadjinikitas
Email: mhadjinikitas@yahoo.ca

 

Upcoming Meetings

For a list of meetings and events near you, visit Upcoming Events.

Interested in Starting a Group?

If you are interested in becoming a Support Group Leader, we can provide you with advice on how best to do manage your group. For example, we can introduce you to local speakers, provide information materials and checklists, share lessons learned, etc.  Once you become a group leader, you will be able to login to the Foundation's Support Group Leaders Toolbox where you will be able to download a number of helpful tools and templates designed to help you effectively manage your group.

For more information, please contact us at support@pemphigus.ca.