Resources

We hope the following resources will be helpful to you. Please do not hesitate to contact us with your suggestions other helpful resources.

 

Newly Diagnosed

  • Patient Checklist (Canadian Pemphigus and Pemphigoid Foundation. 2008) - a guide for the newly diagnosed patient or someone who is still trying to get their condition under control to help prepare you for your next doctor appointment(s). (PDF)
  • Understanding the Jargon (International Pemphigus and Pemphigoid Foundation 2008): a glossary of commonly used terms. (PDF)  
  • Fast Facts on Pemphigus (produced by National Institute on Arthritis and Musculoskeletal and Skin Diseases - a national institute on health of the U.S. Department of Health and Human Services)

 

Ongoing Health Management

  • Managing Our Health Program provides information to patients on ways in which they can better manage their health and cope with the symptoms and side effects of their disease and treatment therapies.  Experts help the Foundation prepare short, patient-friendly information bulletins on some of our most pressing health management concerns.  If you have an area that you would like us to cover, please let us know but contacting us at support@pemphigus.ca
  • Sample letter to dentist or other practitioner introducing your condition. This letter can be modified to suit your needs. You should discuss your situation with your dermatologist first and then have him/her sign this letter. It may help get you the medical help you need. (WORD DOC)

 

Local Support Groups

  • Support groups for patients and caregivers are starting up around the country.  We encourage you to visit one near you or contact us if you’d like to start one.  For more information, click here.
  • Past Support Group Presentations  - Presentations for you to download from our support groups across the country.

 

 Useful Links

  • The International Pemphigus and Pemphigoid Foundation has prepared some excellent articles for patients. They cover a range of topics including medical, health and lifestyle issues.  You may find some of them relevant to your situation.    
  • Canadian Pension Plan Disability Program - If your condition is preventing you from working (e.g., you need to go on medical leave), you may qualify for disability benefits.  Visit the CPP Disability Program website for more information or call 1 800 277 9914 (for service in English) and 1 800 277 9915 (for service in French).