Patient Perspectives

Learn more about how others are coping with diagnosis, treatments, side effects and the day-to-day living with these conditions.  To share yoru experience(s) and the lessons you have learned along the way, please visit "Tell Your Story".

Please Note: Stories shared by patients and caregivers on this website are not intended as a substitute for informed medical advice. These stories have not been reviewed by our Medical Advisory Council. The Canadian Pemphigus and Pemphigoid Foundation does not endorse any practitioner, product, therapy or care identified by the authors of these stories. It is important that you consult your physician or other healthcare professional for advice and answers about your own medical situation. 

  • My Story. July 2011
    Initially I became sypmptomatic January 2007. I had extreme sore throats and difficulty swallowing. I also had 4-5 random blisters on my body and scalp which were very itchy. I had 3 throat swabs done  ... [more]
  • Remission is Possible with the Right Drugs and Tapering Regimen. July 2011
    In June of 1994, I began experiencing blisters in my throat. I visited several doctors (e.g. GP, dermatologist, ear, nose and throat, infectious diseases) during the period June to December. None was ... [more]
  • Sleep - I Need Sleep . August 2010
    So this is my story of triggers. When it was bad (in the early days) - it was about chocolate, wine and anything that I ate that did not come from my own fridge. I did not eat garlic or onions and ... [more]
  • I Survived Oral Surgery!. June 2010
    I have had PV for a number of years and like others it started in my mouth. It ravaged my gums and over time they had receded significantly. I was reluctant to have any work done on my gums until my PV ... [more]
  • Finding My Own Bone Care Approach. May 2010
    I had a bone density done in Jan 2007. This test was done before I was diagnosed with PV. The results were that I was considered osteopeanic. My family doc told me to take calcium 500mg 3 times a day, ... [more]
  • My Experience with Pemphigus Vulgaris. July 2009
    I was diagnosed with Pemphigus Vulgaris in early 1998. The treatment entailed taking high doses of prednisone and chemo therapy. By the end of December 2007, I finally came off the steroids and other ... [more]
  • Take Charge of Your Own Health. July 2009
    I started getting symptoms in the Fall of 2007 for what was initally thought of as contact dermatitis. It started with an itch that I scratched and then a tear in my skin and got progressively ... [more]