Caregiver Perspectives

Learn more about how others have helped their loved ones to cope with the diagnosis, treatments, side effects and the day-to-day living with these conditions.

Please Note: Stories shared by patients and caregivers on this website are not intended as a substitute for informed medical advice. These stories have not been reviewed by our Medical Advisory Council. The Canadian Pemphigus and Pemphigoid Foundation does not endorse any practitioner, product, therapy or care identified by the authors of these stories. It is important that you consult your physician or other healthcare professional for advice and answers about your own medical situation. 

  • The Diagnosis and Thereafter - A Husband's Perspective. May 2009
    I was overseas on a business trip when I heard the news from my wife that she had a rare condition that had something to do with the autoimmune system. This news came after we spent the previous months ... [more]
  • What Sisters Do For Each Other. May 2009
    My sister was first diagnosed with pemphigus vulgaris about two years ago. It's been two difficult years with extreme challenges and heartbreak. For four months she had been misdiagnosed by various doctors/dentists ... [more]
  • Helping a Colleague. April 2009
    I had been worried about my colleague for a few months - he had seemed distracted and sad. I finally said something and then wished that I had spoken sooner. He had had a skin operation but the lesions ... [more]

    • If you are a caregiver and would like to share your experiences or lessons learned please contact us at support@pemphigus.ca.