Tell Us Your Story

Pemphigus and pemphigoid are rare autoimmune diseases that do not have a predictable path for disease progression or in many cases for treatment therapies. Despite this uncertainty, we all seem to find our way to cope often with the help of our friends, families and many healthcare professionals.

On our journeys, many of us have found remedies that have worked for us - to either care for our wounds, calm our minds, care for our bodies or deal with others including our doctors, colleagues and families and friends.  If you have a morsel of wisdom or insight, we encourage you to share it.  You never know how many people will benefit.

Here are some topics that you may wish to consider:

  • How were you diagnosed?
  • How are you taking care of yourself?
  • How has your life at work or at home changed?
  • How are you managing as a caregiver?
  • Is there any positive experience that you can share with others (e.g., a great doctor, a sympathetic knowledgable nurse, a good friend, etc.)

Please note that we will contact you directly, before we publish or post your story on our website or in any of our publications.  

Thank you!

Click here to "Tell Us Your Story"!